Wow, it is amazing what a change of scenery can do for the psyche, you know? We made it home from Vegas, and it was great spending time with my husband’s family and meeting my new little niece. She is just so adorable (and so little – 8 weeks old!). It was nice letting down […]
[Continue reading...]Jordell…The beginning
16 Mar by
Guest post by Nichole, Mom to Jordell with Gaucher’s Disease type 3 Jordell was always a normal little boy but seemed to have a big tummy and was sick alot. All the doctors said it was normal and he would just grow into his tummy. When he went for his 18 month check up I […]
[Continue reading...]My sleeping girl
12 Mar by
It is weird being in Vegas this time. We usually go twice a year to visit my inlaws, and each time, Daddy and I set aside a certain amount for gambling. You know, the amount we are willing to lose without feeling guilty. This year, we knew we couldn’t gamble because of our current financial […]
[Continue reading...]Hannah’s first plane ride!
11 Mar by
We are here in Vegas. (No, not “Vegas” with the flashy lights, but the residential side of Vegas where my inlaws live – it is so funny how everyone assumes you are going to “Vegas” when they ask!). My inlaws put us up in a hotel not far from their house to give us a […]
[Continue reading...]Third Cerezyme treatment completed!
10 Mar by
We seem to be getting into a routine already with Hannah’s Cerezyme enzyme replacement therapy treatments. I leave the house around 7:45 AM or so, drop Abby off at preschool, and then head downtown to the hospital. The last couple of times, I have gotten there around 9:30 AM. We park in the clinical care […]
[Continue reading...]Power of positive thinking
9 Mar by
I’ve been feeling very down and overwhelmed these last few days. I haven’t been taking care of myself at all…I’m at my highest weight ever, I have started really not caring about what I look like when I go out in public, and I just don’t pay attention to the things I need to do […]
[Continue reading...]
Latest Comments