My blogroll for active blogs for children with rare diseases and other life-threatening medical conditions is slowly growing. I’ve removed the direct links from the bottom left sidebar, and I have created a separate page listed at the top “More Special Kids.” Please keep sending your links and help spread the word. If you have […]
[Continue reading...]Be at Peace, Tuesday Whitt
1 Feb by
Little 2-year-old Tuesday Whitt passed away from cancer. Please keep her family in your thoughts…
[Continue reading...]Need a little help with a project…
1 Feb by
I need your help. Yes, you. Whether you are a regular visitor or just happened to visit my site for the first time, I need you. I’m on a mission to find and compile all blogs and up-to-date websites of children with rare diseases (or adults who were diagnosed as children). There are over 6000 […]
[Continue reading...]Milestone!
1 Feb by
During the past week, Hannah is starting to master the ability to roll from her tummy-time position to her back!! We are so proud 🙂 Tummy time has also become a bit easier on her, as she can last at least 5 minutes (sometimes a bit more) on her stomach. As for turning from back […]
[Continue reading...]Link between Parkinson Disease and Gaucher’s Disease
31 Jan by
My non-science brain is trying to process all the information there is out there on Gaucher’s disease. In my research, I’ve come across quite a few recent articles regarding a link between Parkinsons and GD, even on the Michael J. Fox Foundation for Parkinson’s Research. Google has over 125,000 documents listing both of those diseases […]
[Continue reading...]More politics of doctoring…
31 Jan by
One of the reasons I blog all of this is that it is therapeutic for me. (Also, my brain and thoughts are all over the place, and since I am not the most organized of people, having all my notes, thoughts, and feelings in one place makes it easier for me to be organized.) Maureen […]
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