Finally all the pieces have come together for a treatment date. Thank goodness email is free because otherwise the amount of communication between all the parties involved would have cost a pretty penny! Monday, February 9, 10 AM, for her first IV infusion for Cerezyme enzyme replacement therapy. We are doing it at the hospital’s […]

Wow! I can’t believe my beautiful baby girl is six months old today. Boy, did time fly! Her personality has definitely started to develop. She loves to smile, she is such a charmer, and she has the cutest laugh. I don’t know what it is with all my kids, but they have always loved other […]

There were so many times during the past couple of months before we got our diagnosis that I feared losing Hannah within a matter of months. NPC scared the hell out of me. Not only would that disease take her away from me quickly, but it would do so in such a horrific and debilitating […]