Today is the official launch of a new blog called Sited and Blogged! So, what is Sited and Blogged? Sited and blogged features blog posts from a variety of bloggers. These bloggers are contributors to this site or bloggers who have submitted posts. Sited and Blogged is a reference point of items of interest from […]
[Continue reading...]Rough, rough morning
23 Jan by
I try and keep Little Girl A and Big Boy E’s adventures in our lives separate from this blog, but something happened with Little Girl A that is still just breaking my heart. She goes to preschool 3 days a week (she is almost 5 and will start kindergarten next year). She was going 5 […]
[Continue reading...]More on the hearing test
22 Jan by
I sent an email to Dr. W., Hannah’s guardian angel and a specialist on Gaucher’s (who referred us to Dr. S. next month). Here was his reply: THere are some subtle abnormalities in hearing related to auditory nerve dysfunction that may be found in type 3 patients and that,to my knowledge, are not found in […]
[Continue reading...]Sedated hearing exam?
22 Jan by
So I get a call from the hospital clinic’s audiology department today to schedule a “sedated hearing exam” for Hannah. I had no clue what she was talking about since Hannah passed her newborn hearing exam without any problems. I GUESS Dr. G., the genetics doctor, ordered this exam. Nice of him to tell me […]
[Continue reading...]Playtime!
21 Jan by
This was taken yesterday. I am constantly amazed at how active and happy Hannah is. She just loves her exersaucer. It gives her the freedom to stretch out her legs (she loves to try and stand) and play with her toys without her huge abdomen (her enlarged spleen and liver) getting in the way. Seeing […]
[Continue reading...]I know I took a step forward…
21 Jan by
but in retrospect, I’m still exactly where I was yesterday. I finally was able to touch base with the genetics nurse coordinator yesterday afternoon. Basically, she wanted to know if Hannah would be a “good stick” for the IV based on “my experience.” She hasn’t had that many IVs in her life, thank goodness. She […]
[Continue reading...]
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