Yeah, we got DENIED immediately for supplemental security income (SSI) for disability assistance (Gaucher’s Disease is considered a “disability” as it lasts longer than 12 months and requires continual treatment). Once she asked my husband’s income, well, that was pretty much the end of the interview. The thing that really bothers me is that we […]

I’m going to start working on a video to help increase awareness of Hannah’s condition, and I’m really stuck and have no idea what songs would be good for a montage of pictures and information. I want a song that is heartwarming but uplifting as well. Any suggestions out there?

Hannah has redeveloped a bad habit she had as a baby. Scratching her face when she is tired. Most babies do that when they are newborns, but Hannah has just started doing it again this past week. However now, even with her nails cut and filed very short, she is gashing up her forehead. I […]