Growing up, I was never really heavily religious.  Sure, we did the important holidays (Passover, Hannukah, sometimes Rosh Hashana and Yom Kippur).  However, I always felt a strong connection to my Jewish culture.  I guess you could say that I’m “culturally” Jewish.  I married someone who wasn’t Jewish, but he embraced the Jewish religion, learned […]

Great visit with Dr. B, Hannah’s pediatrician today.  Basically, she is stable.  Her spleen and liver have not grown in size measurement since her last appointment three weeks ago.  She has an “old fashioned” cold (congestion), which on top of her laryngomalacia, we have to keep an eye on.  He also doesn’t agree with early […]

On his last email to me, Hannah’s genetic doctor said that they will be sending off her fibroblasts from her skin biopsy once the cells have matured (or whatever they do) for a “full workup.”  I looked up the website for the laboratory doing the study, and this is what they will be testing for.  […]