Finally, a positive meeting. Keeping in mind that Hannah was born a month early, her adjusted age would be 3 months. She is basically just a tad behind in everything at the 2-month level except, and get this, socialization! She is at a 6-month level in that already. Not surprising though — she smiles, laughs, […]
[Continue reading...]What am I supposed to say?
We have some great neighbors here. They know my kids really well, and they spend quite a bit of time over at all of their houses. I don’t really talk much about what is going on with Hannah to anyone around here, except a couple of them. They know her symptoms, they know the many […]
[Continue reading...]Skin biopsy update
Finally got an email response from Hannah’s genetic doctor’s nurse… I just checked with the lab. They could give me no indication for concern, so we must assume it’s growing and will be sent for testing at some point in the near future. Unfortunately, they can never say precisely how long that will be. At […]
[Continue reading...]What this week will bring…
(New post at my daily life blog – click to read) Unless we hear something about Hannah’s skin biopsy, which I doubt, the only thing we have going this week is a meeting to come up with a IFSP (individualized family service plan) with Early Intervention. Two people are coming over on Wednesday morning, and we […]
[Continue reading...]Forgetting and Remembering
We had a quiet Thanksgiving at home this year. We didn’t want to travel with Hannah being only 4 months old, so it was just our family. Daddy cooked an awesome dinner, right down to my yams made the way my mom does. Even Hannah sat with us in her new highchair, even though it […]
[Continue reading...]Thanksgiving and my “cause”
For those of you on facebook, I created a “cause” for Hannah. I’m not asking for donations at this time, I’m just trying to spread awareness of what is going on with her. When we know what the actual diagnosis is, I’m going to come out fighting and do whatever I can to help her! […]
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