After last night’s scare, Daddy and I were so concerned about Hannah’s breathing and second-guessing our decision to put her on a vent to help her breathe. Apparently that decision is moot at this point. Our hospice coordinator (who is our lead nurse) came to visit today. We talked about how things were going […]
[Continue reading...]Tonight’s scare
2 Dec by
We had a very emotional scare with Hannah tonight. It was only minutes after we had put Ethan and Abby to bed. I had noticed Hannah waking up, so I went to grab her from her bed for some cuddle time. The weird thing was she was really stiff in her lower body, something we […]
[Continue reading...]Actual Video Clip
30 Nov by
Thanks to a wonderful blog reader, I now have the actual clip of the NBC news piece that was done on Hannah on Thanksgiving. It includes the promos and teasers that were also played during the day (at the beginning). Also, Mitch, the wonderfully caring man instrumental in getting us this interview and helping us […]
[Continue reading...]Grieving in limbo
27 Nov by
I’m having a really rough night tonight. It seems like so many things are setting off the tears tonight. This is hell. I know how hard this has been on Daddy and me. It is like we are stuck in between grieving and fear. It would be one thing if Hannah was able to be […]
[Continue reading...]Hannah’s NBC 3 news piece
26 Nov by
The NBC 3 news piece is now online. I’m not sure how to copy it on here because it is actually the entire 30-minute broadcast, but Hannah’s piece starts about 9:20 minute mark or so. She is also the beginning teaser of the newscast. If someone knows how to take this off their website […]
[Continue reading...]Holiday Gifts
26 Nov by
Ugh, last year I loved Black Friday shopping. Granted, I did all of it from the comfort of my jammies and computer, but I was counting down the minutes until the sales started and even had my lists ready to go. I must have done about 75% of all my shopping that night. Just a […]
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