Hannah was a few days overdue on her Cerezyme treatment.   It was important to us to continue treatments because Hannah’s comfort is always our priority. Our hospice coordinator had been working to get Hannah’s treatments done at home now that she has the broviac catheter (and doesn’t need an IV anymore). We just assumed […]

Thursday was just so busy.   First it was the very long morning at the cemetery making arrangements. On the way back from the cemetery, we picked the kids up from school.  “Mommy, where did you go?”  Abby asked.  “We had some errands to run,” was how I answered her.  If she only knew what […]

Daddy and I decided that we needed to make Hannah’s final arrangements sooner than later.  It was a lesson that I learned from Cooper’s mom, seeing what a difference it was for their family having everything done so they didn’t have to add that stress when Cooper lost his battle with Mito disease.  It just […]