We brought Hannah home on Saturday afternoon.  With the exception of anxiety and problems sleeping, she was doing really well. Or so we thought.   She is so uncomfortable to the point where she can’t get comfortable, cries out constantly, and just can’t be still.  The only relief she has is when we give her chloral […]

With the fundoplication out of the way, we have (hopefully) solved her problems with reflux and aspiration.  This is a huge relief because I feel like we have just been so lucky and have dodged the aspiration pneumonia bullet (common with nGD) that she could have so easily gotten at some point. Even with all […]

We were given two options to consider to deal with Hannah’s reflux and, in turn, aspiration issues. The first was a fundoplication.   The big “con” in this choice is that it is surgery.   It may be a common surgery, but with Hannah, we can’t treat even common things as “common.”   Other cons is […]