I started the process last November of last year to get Hannah an appointment with Dr. Sanger down at Children’s Hospital Los Angeles. He is one of the leading pediatric movement disorder neurologists in the country, and from what I have researched, he is very into research new ways to control movement disorders. It […]
[Continue reading...]Fireworks, baby!

It was so important for me to have Hannah see fireworks this year. Even though it was all about “me,” I wanted her to experience them. I needed her to experience them. Last year on July 4th, she was in the hospital. Her 7th of 8 weeks in a row in the hospital […]
[Continue reading...]Pulmonology update
We had our follow up with the pulmonologist yesterday. Even though we were supposed to follow up after 4 months, it ended up being 6 months since we had seen him. The day before I ended up in the hospital was the day of her appointment, and I just wasn’t up to it (now […]
[Continue reading...]School nursing compromise
We had our final meeting with the school district this week in order to prepare for the upcoming IEP meeting which will determine what services Hannah will get when the school district takes over. After talking to one of the heads of the nursing staff there, they are now saying they will provide a nurse […]
[Continue reading...]Fight for stimulation and socialization
Tomorrow is our final assessment meeting with the school district. It is the psychological evaluation, and well, I really think it is just going to be me talking about Hannah again with Hannah just being her cute adorable self. I have been starting the conversations with quite a few important people this past week […]
[Continue reading...]Hannah’s future
We spent this evening at my in-laws house hanging out in the backyard, enjoying the warm and beautiful weather. I’m not sure how the conversation with Abby started about going to school so you can learn to live on your own, but this is the just of how it went. Abigail: “So, Hannah is going […]
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