Bathing Beauty

I couldn’t resist getting Hannah a bathing suit today at Target.  Even though she can’t technically “swim” because of the trach, we want to be able to let her sit go in the pool with us and let her get wet up to her hips or waist this summer and at the pool at Give […]

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Give Kids the World – a dream stay

I’ve been sharing with quite a few people lately about where we are staying when we are in Florida. The village is called Give Kids the World, and from what I have learned, the only families that stay there are ones who have been granted wishes from a wish organization, primarily Make-A-Wish.   When we […]

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Preparing, preparing, preparing…

17 days until we close escrow on our new house. 25 days until we leave for Florida and the trip of a lifetime. About 45 days until we move from our rental to our new home. So much to do.  It is crazy!   Today I spent time working on the medical support part of […]

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Trach Change and Hypoxia, again…

I dread, dread, dread trach changes.   Both Daddy and I do.  Especially during these past few weeks. Tonight Daddy went to change out Hannah’s trach (which we do every Sunday), and again, she got upset, panicked, got a spasm in her throat which then Daddy could not get the new trach in.  Then she […]

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I’m a singing sensation!

Hannah and I had the evening to ourselves tonight because Daddy took Ethan and Abby to the Monster Truck Jam. I loved it!  I really enjoy the time that we have to ourselves, without distractions, because they seem so few and far between these days. When she started getting tired (around 10 pm because she […]

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Eye contact, a mom’s dream

I said earlier that today was a good day.  But it just wasn’t the great home inspection.  That was just the tip of the iceberg. When I picked Hannah up this afternoon, she let me hold her upright, and she gave me DIRECT and FOCUSED eye contact!   Usually when I pick her up, she […]

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