Today was not a good day for Hannah. It started last night. She woke up around 2:30 am, and even though she was exhausted, she stayed awake until 5 am until Daddy and I switched swifts. The difference this time was that Hannah’s movement disorder was really significant. It almost seemed like her seizures were […]
[Continue reading...]Changing Sleep Habits
7 Feb by
You know, it could be because she is starting to feel better now that she gotten over the trachiitis and strep and got the antibiotics out of her system. Or maybe not. Whatever the case, Hannah’s sleep habits over the past week have become quite crazy. If she takes just one nap during the day […]
[Continue reading...]House Hunting Time
5 Feb by
We realized it is time for us to start house hunting again. Our lease is up in May, and we really need to see if we can afford to purchase a new house. The most important reason we need to make this work out is that we NEED to have a one-bedroom house now. This […]
[Continue reading...]Changes
5 Feb by
Daddy had to go out of town for work for three days. It was the longest three days of my life, it felt like! It had its horribly crappy moments, which I don’t feel like rehashing here, but needless to say they will never be forgotten. I realized some things while he […]
[Continue reading...]The smile that rocks my world (Video)
3 Feb by
Hannah just love her ball popper. Even though you can’t hear the sounds of laughter because of the trach, you can definitely see her loving this toy. You can also see how her movement disorder affects her, and what I found interesting after watching this is that her laughter and smiles are stronger than her […]
[Continue reading...]Mama’s breaking point
3 Feb by
All these night shifts, staying awake until 5 am every day, and then having to get the kids up at 6:30 am and get them ready for school today because Daddy is out of town for a few days…well, I finally hit the wall. After Hannah’s nurse showed up at 8 am, after a very […]
[Continue reading...]
Latest Comments