Last night, Daddy and I had one of our reality discussions about Hannah that we have to have but just sucks that we have to have. We have both seen the deterioration in her condition, especially over the past month. How much of it is chalked up to being sick with trachiitis and strep plus […]
[Continue reading...]Can someone please tell Hannah to stop pulling out her trach?
26 Jan by
Yep, she did it again this afternoon while her nurse was changing her trach ties. She yanked her trach out again, panicked, and started turning blue again. Thank goodness we had the oxygen this time because we were able to force oxygen in her lungs while she was having her breath-holding spell. Her […]
[Continue reading...]Happy 2-1/2-year old birthday, Hannah!
25 Jan by
Guess who turns 2-1/2 years old today 🙂 I feel like it is another milestone reached, you know? There is this little song that I made up to sing for Hannah that she just absolutely loves. I sing it many times a day, especially in those cuddling moments where it is just her and […]
[Continue reading...]Heaven’s Very Special Child
24 Jan by
A meeting was held quite far from Earth. It was time again for another birth. Said the Angels to the Lord above –” This special child will need much love. “Her progress may be very slow, “Accomplishment she may not show. “And she’ll require extra care” From the folks she meets down there. “She may […]
[Continue reading...]Why blood and trachs don’t mix
23 Jan by
Hannah can’t seem to catch a break this week. She has definitely started towards the road to recovery. However, she is now having these pseudo-coughing spells that are causing blood to splatter out of her trach. She can’t really cough like we do, but it is like she is trying to cough out the gook […]
[Continue reading...]Recovery
22 Jan by
Hannah seems to be doing much better now, thank goodness. Last night was very iffy, as we almost went to the ER when her fever hit 103.1 around 11 pm. Daddy and I kept going back and forth with the “do we go” or “do we not go.” She was having no sleep apnea […]
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