It took us just under 4 months, but Hannah has been approved for the Katie Beckett program here in Nevada.  What does that mean?   MEDICAID!!   It is such a huge relief knowing that we have this blanket available for Hannah just in case we have problems with our insurance company. We will be […]

The New York Times posted an article a few weeks ago about a young boy, Owen Cain, who was diagnosed with Spinal Muscular Atrophy, type 1.   His family had spent thousands of dollars on assistive communicative devices over the years, but they were never able to find something that was a good fit for their […]

Hannah is definitely on the mend.   She only has 2 more days of Cipro left for her trachiitis (pseudomonas), and we are finally starting to see her old personality come back.  She is not as exhausted all the time (no more 3-long-nap days), and she is willing to be more engaged and is wanting […]