With Hannah’s condition getting back to the baseline she was at before she was hospitalized (and even better in some places), we decided that we need to start getting back out into the real world and doing things as a family again. After a few attempts out  (few restaurants, shopping, Freemont Street, and a craft […]

I think a lot of my anxiety over the past few weeks has to do with the uncertainty of Hannah’s prognosis.  Seeing her disease progress, realizing that she is falling farther and farther behind developmentally, dealing with more complicated medical issues, etc. But a lot of it also has to do with Baby Kyle.  He […]

We had our 2-month followup with our local neurologist today. It went exactly as I thought it would.  Then again, in all honesty, I went in there knowing exactly what was going on, what she was going to say, and what medication changes I think would work best for Hannah. She put Hannah back on […]