Tomorrow is (hopefully) going to be a big day for Hannah. She gets her trach changed out by Dr. Albright, Dr. Roy’s partner. This is a huge event for me because it means she is ready to be finally weaned off the sedation and paralytics. It means that we are one step closer to getting […]
[Continue reading...]PICU, Day #21, Feeling homeless
7 Jun by
Hannah has been sedated and paralyzed all day, again. Day #2 postop. Daddy and the kids (and animals) all arrived in Vegas in the early afternoon at our new home. Suddenly, it just all hit me at once that I am homeless right now. I feel like a resident of TCH, wandering the halls at […]
[Continue reading...]PICU, Day #20, Quiet Day
6 Jun by
When I checked at 5 pm to see if I got a room tonight at the Ronald McDonald House, I was bummed to find out I didn’t. As I settled into the recliner in the PICU waiting room at 11 pm, I got an excited message from the PICU receptionist saying that there was an […]
[Continue reading...]PICU, Day #19 – Unchartered Territory
5 Jun by
When I woke up this morning, the plan was for Dr. Albright, Dr. Roy’s partner, to do the trach late in the afternoon. Hannah would also get a gastric tube as well to help with the feedings, and Pediatric Surgery would do that. I came down around 8 am, and Hannah’s room was completely empty […]
[Continue reading...]PICU, Day #18 (pt 4) – Trudging forward
4 Jun by
Today just sucked. No other way to describe it. Can’t even say it was a roller coaster type of day because it wasn’t. It was just tough, emotional, and painful. I found out that her night last night was absolutely horrible. She was so angry and agitated from being weaned off the sedation meds that […]
[Continue reading...]PICU, Day #18 (pt 3) – 50 minutes
3 Jun by
Hannah was extubated at 10:05 am today and reintubated at 10:55 am. Within 10 minutes, I knew that she was not able to breathe the way they expected. They tried a lot of interventions, but nothing worked. The attending is waiting to hear from Dr. Roy, Hannah’s ENT. She wants to talk to him […]
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