PICU, Day #12 – Liver Involvement and ChildLife

I went down this morning during shift change (7 am) to check on Hannah.  They ran liver function tests (LFTs) at 4 am, which was scheduled yesterday from rounds.  They were concerned with chloral hydrate’s affect on the liver since that is where the chloral hydrate metabolizes and since her liver is still mildly enlarged […]

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PICU, Day #11

She is still on the vent.  She is still heavily sedated and very difficult to keep sedated. Not much really happened today except that she failed her two-hour CPAP trial.  She made it an 1 hour 40 minutes before they stopped it because she was struggling to breathe.   She has been passing her 1-hour […]

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PICU Day #10, Slowing down and breathing

She has been hospitalized 11 days now — ELEVEN!  She has been on the vent for 9 days now.   I want my baby back!!!!! Today was actually a very quiet day compared to yesterday.   The Texas Children’s Hospital discharge planning staff was supposed to have a conference call with our insurance company today […]

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PICU Day #9, Mama sad…

It has come to the point where I wander these hospital halls at night going between the 3rd floor (PICU) and the 4th floor (RMH) in a total daze.   Almost like I am on autopilot.  It would be one thing to go down, and Hannah was awake, alert, etc., so that she could interact […]

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PICU Day #8, Out Dang Junk, I say!

Today was an emotional roller coaster.   During rounds today, everyone felt that Hannah was ready to be extubated.  Even though I was nervous about the procedure, I thought she was ready too after being given a few extra days of rest to help “get the junk out.” Because they were very well educated on […]

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PICU Day #7, “Texas Tornado”

No extubation today.  Hannah’s chest xray looks unchanged since last Tuesday, and they are still suctioning a lot of yellowy junk from her lungs, so they wanted to give her another day on the vent.  They ended up doing another CPAP trial again today, for 60 minutes, and she did great. They seem to believe […]

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