It is hard to believe that she has been here at TCH for one full week now. Tomorrow will be the beginning of the second week. Geez… For the most part, today was a status quo day. She did a trial CPAP test for 60 minutes to see how she would tolerate a CPAP […]
[Continue reading...]PICU, Day #5
22 May by
I’m in one of the nap rooms of the Ronald McDonald house right now. This place has been a godsend, I tell ya. The main RMH is about a mile away, which is used for families of longer-term patients. This one in the hospital is just for PICU and NICU families. Today I had […]
[Continue reading...]PICU Day #4
22 May by
I just left Hannah, and I was in a great mood, ready to write a very positive update. I had just left my kids and husband who came down for dinner and was walking back to the Ronald McDonald house. In the hallway by the NICU, I saw a mom who I had met in […]
[Continue reading...]Reflections
21 May by
I actually had to look on my computer just now to see what day it was. I can’t believe it is already Friday! Sunday, Hannah was playing with her toys, cuddling, and just being Hannah. Today, well, you know… I was able to get a room at the Ronald McDonald house upstairs from […]
[Continue reading...]Hospitalization, day #3 PICU
21 May by
“Stable” is the word of the day. For the most part, Hannah has started to stabilize instead of getting so much worse in such a short amount of time. We got a lot of answers today. We know what we are dealing with. She tested positive for the adenovirus. It is a crappy virus […]
[Continue reading...]Hospitalization…day #2, PICU
19 May by
When I woke up this morning, I remember specifically thinking “I wonder what today will bring” for Hannah. I had no idea it would end up with her getting so worse, so fast, and ending up in the PICU being intubated and on a vent to help her breathe. I’m actually hesitant to say day#2, […]
[Continue reading...]
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