At the end of Hannah’s first full day of hospitalization, I will admit that I am incredibly worried, as her condition has worsened and become more serious since she was admitted. We got to TCH’s ER around 10 pm last night. We spent 9 hours in the room there while they worked on her […]
[Continue reading...]Hospitalization, the beginning…
19 May by
I’m sitting here at Texas Children’s Hospital, 10th floor. Next to me is my beautiful little girl, Hannah, who is has an IV going in each of her hands, an oxygen mask over her face, an EKG machine and pulse oximeter machine going, two bags hanging from the IV pole, and a separate box on […]
[Continue reading...]Happy Mother’s Day — to me!
9 May by
Last year at this time, my heart was not into Mother’s Day. Hannah had just been diagnosed a few months earlier, and we were still coming to terms with it. We were living month-to-month, not even knowing if she would make it to her first birthday. I just did not feel the joy of […]
[Continue reading...]Tube surgery — like a “normal kid”
8 May by
We left for the hospital at 4:30 am for Hannah’s 7:30 am ear tube surgery. After yesterday’s visit at the Anesthesia Clinic, I felt somewhat confident that everything was going to be okay. The anesthesiologist I met yesterday agreed that IV sedation was okay for this surgery. So when the anesthesiologist who was handling Hannah’s […]
[Continue reading...]Little Olivia, Sweet Olivia. Life with type 2 Gaucher’s.
6 May by
This beautiful sweet face is Olivia. She was diagnosed with Gaucher’s Disease type 2. I have talked about her any times on here (including my last post, I believe). She and Hannah have so many similarities, both in presentation of symptoms and, well, they just look very much alike! I call Olivia Hannah’s “soul sister.” […]
[Continue reading...]Much needed reminders
4 May by
Today, I received quite a few reminders that as bad as I feel that things are going right now, that it could always be much worse. I found myself worried about a friend whom I have known for about 10 years, a wonderful mom to 3 kids, who lost her home and all their possessions […]
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