For the past couple of days, I had been feeling a bit down with everything, especially since we had such a rough travel to and from Dallas.  Knowing we have to make an even longer road trip in a few days to the nursing home (4-1/2 hours each way) to satisfy Hannah’s MDCP requirement so […]

I was sent an email yesterday asking why I don’t post as many updates as I used to in the past.  On the surface, the reason is because there isn’t that much going on anymore in terms of doctors appointments, testing, etc.  We know what we are dealing with now, and we just have to […]

We seemed to have entered a new phase in this journey.  I guess it was inevitable considering her diagnosis. After having a 45-minute visit with our pediatrician, we both agreed that we need to have some backup assistance when she has another breath-holding spell.   We can’t have the racemic epinephrine breathing treatment they gave Hannah […]