I haven’t been posting as much recently because things have started to calm down a bit, and we are finding ourselves getting into more of a routine with everything. Hannah is now at 5 therapies a week (PT, OT x2, Dev therapy, and vision). We are still working on getting the speech pathology consultation. She […]

Today was a good day.  A really good day. We started our twice-a-week occupational therapy sessions this afternoon.  It was a really rough start because as soon as Hannah saw Pat, the OT, she broke into hysterics and didn’t want anything to do with therapy today.  But I didn’t give in to Hannah this week […]

I wish someone had given me a heads-up as to what parenting a special needs child with a life-limiting disease is really like.  I wish someone would have told me about how consuming this type of lifestyle becomes.  I wish someone would have shared that tears (happy and sad), fear and hope, and chaos would become […]