I had a very informative and positive telephone conversation with Greg Macres, founder of the Children’s Gaucher’s Research Fund (read his son Gregory’s story here). They are definitely still going full-steam ahead with research and funding, even though the website is out of date. He seemed very enthusiastic with my ideas for fundraising and exposure, and I expressed my very strong interest in raising money for his research.
Great news — there is almost a Gaucher’s Disease type 2/3 mouse! Seems like they need about $100,000 more dollars for this mouse, and if it is successful, then there will be a whole avalanche of researchers willing to work for a treatment/cure for GD2/3. Very, very exciting stuff. Instead of having to do hypothetical research, they will be able to test lots of different ideas on the mice to see their responses much quicker, which would mean possibly a quicker treatment for Hannah and the other type 2/3 kids.
I feel so much better also because I can now focus my energy on doing what I want to do, which is raise money and awareness, and leave the business and scientific end to Greg and his group.
Time to start creating awareness and raise funds!!! Whoo hoo!!
Please help me and Hannah fund this mouse!
What fabulous news. I’m sure he is excited too after talking to you and hearing your enthusiasm.
Ok lady, let’s get on this thing! 100K…no sweat. 🙂
WE CAN DO IT! We WILL do it…
My husband works a lot with designer mice like this! They can make a big difference in research. It’s exciting news.
I didn’t even know how that type of thing came about. Good luck with the fundraising. I can’t promise, but if I do “come across” any money I am definitely going to contribute. If there is any writing you need done or something like that I wouldn’t mind doing it.
Petula’s last blog post..Time to come clean