Meeting with a Parkinson’s Neurologist

About a month ago, I sent an email to the Baylor Department of Neurology’s Parkinson’s group asking if I could meet with one of their clinicians to have Hannah’s symptoms evaluated.  I explained that Hannah has neuronopathic Gaucher’s disease, and I wanted to talk with someone regarding the possible commonalities between the two diseases.

Yesterday afternoon, I got a phone call from the scheduler for this department saying that Dr. William Ondo, Associate Director of the Parkinson Disease Center and Movement Disorders Clinic is willing to consult with us and evaluate Hannah!   Because she is a patient at Texas Children’s Hospital (Baylor’s pediatric hospital), all of her records and patient information was already accessible to him.

We meet with him in early July, right before we leave for NIH.  The timing for this appointment is actually perfect, even though it is about 5 or 6 weeks away because it gives me more time to learn more about the disease processes of Gauchers and Parkinson’s.

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