Be at Peace, Gage Pruitt, beautiful boy…

Gage passed away.   I feel like my heart is being pulled from my chest right now.  He had Wolman’s disease, another lysosomal storage disease like Hannah’s.  His mom and dad fought so hard for him, so damn hard.  Mary, I wish I could just give you a hug right now, be there for you.


  1. I am sorry to hear that another child was lost to a LSD. I just recieved word that Missouri Governor Jay Nixon will sign House Bill 716 tomorrow, July 8th, at 11:00 AM in a public signing in his office thereby adding 5 lysosomal storage disorders to newborn screening including Krabbe in the state of Missouri. Please extend my condolences to Gage’s family and let them know there are people who care

  2. So sad. No one should ever lose a child. Ever.

  3. That is so sad. I’m very sorry to hear that. My prayers are with the family.
    .-= Petula´s last blog ..What was I thinking? =-.