After the NIH visit, it seemed like we slowed down quite a bit when it came to seeing doctors. After all, they did do almost every test in the book! But now it is time to follow up on their findings and get some answers…
This doesn’t include Hannah’s therapies that are currently 3 times a week and her Cerezyme treatments every other week!
8/26 – Pediatrician visit (haven’t seen him in two months – well, outside of her birthday party!)
8/31 – Otolaryngology, Dr. Roy, second opinion and expert, regarding Hannah’s vocal cord paresis
9/9 – Pulmonology, Dr. Vece, regarding Hannah’s vocal cord weakness (paresis)
9/14 – Otolaryngology, Dr. Larrier, only if Dr. Roy agrees with her assessment
9/16 – Physical Medicine and Rehabilitation, Dr. Woodbury, to go over Hannah’s therapy plan
9/22 – Nutritionalist, to make sure Hannah is getting what she needs since we still aren’t on solids yet
10/13 – Sedated Echocardiogram, to look at Hannah’s atrial septal defect
10/14 – Cardiology, Dr. Jeffreys, to go over the echocardiogram results
10/29 – NeuroOpthalmology, Dr. Edmund — however, I may cancel that since we are going back to the NIH soon
Sounds like fun (not). But it will be good to get some new thoughts and a fresh look at what is going on.