My dearest Hannah,
Today, July 25th, we celebrate an amazing milestone, your second birthday.
From the moment we got your diagnosis at 5 months old, we were told our time with you was going to be very limited. We were told that you possibly would never see your second birthday because rarely does a child with type 2 (which was the type you were assumed to have) live past the age of two.
But here you are. Full of life, smiling, and still fighting.
Your presence in this world has brought so much good. It has brought some amazing people into our lives, both personally and medically. It has rekindled the interest of certain Gaucher researchers and supporters to become more proactive in the search for a treatment and creating awareness for the neuronopathic form of Gaucher’s disease. It has brought families of other Gaucher children together as a support system and friends. The list of people who have been touched by your existence is quite long…and continues to grow.
All because of you — my beautiful sweet girl.
Most of all, it has brought me happiness. A special type of happiness that I have never thought possible. One where just a smile or a small achievement could light up my whole world and make my day feel bright. A type of pure joy that I get when I see you laugh and interact with your brother and sister who just love making you laugh.
Your fight to survive during these past two months was awe-inspiring. I don’t know if I could have ever fought as hard as you did. You truly are a miracle child. You continue to defy the odds, not just during these past couple of months, but your whole life. You continue to amaze and surprise everyone that gets to know you.
Keep smiling my beautiful girl. Happy, happy birthday.
Love,
Mommy
“HAPPY 2ND BIRTHDAY HANNAH”!!! I was so glad to finally meet you and hold you in my arms.
Your Mommy is right, you existence has defitenetly touched many lives.It touched mine in so many ways. I cry when you are in pain and I smile and jump for joy when I hear good news.
I follow you life on a daily basis and I pray for you and your family everyday. I wish you all nothing but the best and that more and more GOOD days are ahead of you !!
Hannah, I love you dearly and I just know that there will be many more birthdays to come. Keep fighting little one!
Your Grand-Aunty Susanxxxx
Happy, Happy 2nd Birthday, Dear Sweet Hannah ~
What a very special day for you and your family and friends. This has been such a time of struggles for you all and my thoughts and prayers are with you.
May the Lord heal your tiny precious body…
Nana Waggs
Happy Birthday, Hannah! Hugs and kisses from across the country– hope your birthday is fantastic! If we were there, Connor would give you a big hug. Here’s to year two– hope to be right here wishing you a happy three next year!
~Jess, Jeremy and Connor
Happy birthday, Hannah!!! Bertrand has a birthday present he wants to send when we get your new address. 🙂 Love and hugs! Cristina, Matthew and Bertrand 🙂
HAPPY BIRTHDAY!
Happy Birthday Hannah! You’re a beautiful strong little girl.
Yippee!! Happy 2nd birthday Hannah. I’m so excited… how wonderful. I hope the birthday girl enjoyed her day.