Hannah passed away at 10:10 pm on Sunday night, December 4th, in my arms after a weekend surrounded by all of her grandparents, aunts, uncles, cousins, and good friends.
She’s at peace now
5 Dec by
Our Fight against Gaucher's Disease type 2 or 3
Our Fight against Gaucher's Disease type 2 or 3
Hannah passed away at 10:10 pm on Sunday night, December 4th, in my arms after a weekend surrounded by all of her grandparents, aunts, uncles, cousins, and good friends.
I am positive that she felt all that love around her. My babies were there to welcome her home. Much love.
Praying for all of you.
Thinking about you and your family.
Sending a lot of love and prayers to you all. I am so sorry. – Kristen (a friend of the Might family)
Our hearts are with you and we surround you with prayers for God’s peace to cover you all.
This news is just too hard to take.
With Hannah pushing alongside Bertrand, we never felt alone.
We will miss her deeply.
Your family has my most tender sympathies.
Sending prayers and love.
All I can do is echo what Mel said. Wishing you strength for the days to come.
Carrie, Robert, Ethan & Abby- sincerest condolances on the loss of your beautiful angel. May you all find the strength together to get through this time. I have followed your story from afar Carrie & you would have to be the strongest woman I know. Much love to you all -xx-
The next days, weeks, months, won’t be easy. I pray that time will bring you comfort and the peace that Hannah now knows. She has always been a beautiful angel.
How blessed she is to have you all as her loving family. How blessed we all were to know her here on earth. Praying for peace for your family during this difficult time.
Hannah will always be remembered here in Ontario, Canada.
Jane
I am so so sorry. I am here for you.
I am so sorry Carrie, Robert, Ethan and Abby. Sending so much love from our family to yours during this difficult time.
Love to you and all your family.
I am so very sorry for your loss, I pray for peace for your hearts. I know Miss Hannah is at peace now but my heart is so sad.
I’m so sorry for your loss.
I am so sorry that Hannah passed away. As a mother of two Type 1 children, I have followed your story with all its joys, heartaches, and frustrations. Hannah was beautiful and perfect in every way. May God give you the strength you need to continue on in your life with your family, especially your other children.
God has received another sweet angel. You have been great parents to a special little girl; she was lucky to have such a strong support system. I have followed your story for a while and think that you are strong individuals that were sent to take care of a beautiful baby. My thoughts and prayers are with you and your family.
Much love to all of your family. Hannah could not have been more blessed to have all of you caring for and loving her. Carrie, you are, and always will be an inspiration as a mother and a fighter.
I so never wanted to see this post but I am glad she is at peace and is in no more pain.
We love you all and will be praying for YOUR peace now that Hannah has found her’s. I am so sorry Carrie. I know every feeling and emotion you are having and I wish I could save you and Bob from all of it. She and Cooper are running free in Heaven now. He’s been waiting for her.
Sarah Knight
You are all in my prayers.
So sorry to hear the news. I hope you can find strength and healing as you all try to move forward, both through the holidays and into the future.
Meg
praying for peace for your family. I am so sorry.
I am truly so sorry for your loss. I couldn’t imagine what it feels like or what you are going through. Hannah touched the lives of so many people. It’s a sad day. Thank you for sharing her story with me. I have Gaucher’s Type 1, and Hannah has inspired me to do so much more for people with this terrible disease. I am so sorry.
Your family is heavy on my heart and in my prayers.
Carrie, as a mother, I know that there are no words of comfort that I can offer. To think otherwise would be the height of hubris, which I do not have. I have followed your story from afar for a while, ever since Scott told me. I celebrated each moment of progress, and my heart broke for you with each setback. In the coming minutes, hours, days, weeks, months, and years, when the pain of having lost your angel may seem to hard to bear, I hope that you will remember your own words, that Hannah is at peace. I marvel the incredibly difficult decision that you made, when you sacrificed your own needs, and you put her needs to be at peace above your own needs to keep her here with you. We can all understand why this was a struggle for you, and for Robert, as well. Also, please remember that you said that Hannah was put on this earth to teach you (and us) something about life. For me, she has taught me to cherish each moment with my own children, and to be grateful for those moments, as life is far too short. For you, the lessons are manifold. Hannah may have came to you (and us) in an imperfect physical form, but her spiritual form was beyond compare. I never met her, but her legacy will be indelible.
I am deeply sad to read about Hannah’s passing. You and your family are in my thoughts. I have been following Hannah’s (and your whole family’s) courageous battle for a long time now, and send you all the love and strength I have in my heart…
Strength, love, and peace to you, Robert, Ethan & Abby. I am so very heartbroken for you.
It is hard to fathom your sadness. I am so sorry for your loss of Hannah and for all the joy she brought to you in her short life on earth. She was a gift to each of you in ways that you know so well, but also in ways you will discover as you continue your journey of life in this world. You are in my prayers, that Hannah’s ultimate peace will continue to bless you with peace and comfort.
Carolyn (in Las Vegas)
Words can never express the ache I feel in my heart for you all. I’m so sorry for your loss of Hannah. She touched many lives, and will continue to. I’m glad her little body is at rest now, so her spirit can soar. You will be in our prayers. Love to all of you.
Prayers, love and hugs are all being sent your way. Love to all of you!!!
How lucky Hannah was to have such a dedicated, loving family. You’re all on my mind and in my heart.
I am so incredibly sorry for the loss of your beautiful daughter, Hannah. I have been following your blog for some time and want you to know my thoughts and prayers were going out to your family each and every day, along with so many others’. You will be in my prayers.
My heart is heavy with this news. Hannah’s smile captured me the first time I read your blog a few months ago. I admire the honesty and openness with which you have shared your family’s story. Hugs and prayers to you all.
So sorry to hear if your sweet Hannah passing. You will have a forever sweet angel watching over all of you. Your family will be in our prayers for the strength to get thru all the difficult days. Carrie, you may not realize how many people have followed your family’s story and have been praying for your sweet Hannah…much love and sympathy to all of you.
Just wanted to to send your family my prayers….
I’m praying for peace and comfort for you and your family. Hannah was a beautiful little girl and together you certainly raised awareness of this terrible disease. May you be surrounded by memories of the joy Hannah brought you all.
Heard about Hannah through Cassie, then saw the story on the news. So sorry to hear she’s gone. May she be at peace & your family find comfort in each other’s love.
Carrie—I am crying many tears for your family’s loss. Close your eyes and remember that you raised an angel. Hoping that you feel the angels wings wrapped around your family. Blessed Be
Carrie, Robert, Ethan and Abigail,
Hannah was one amazing, precious, strong girl who will be truly missed. Her kool-aid smile will be remembered forever. Hannah is now at peace and y’all will always have an angel shining down on you. I am thinking of you and your family during this difficult time. Peace, prayers and blessings…Extra love and hugs being sent your way.
Love always,
Mrs. Pflughaupt
(Ethan’s Kindergarten Teacher)
My deepest sympathies. I hope that warm and tender memories will help your family through this time. You are in my prayer.
Carol Waggoner from the CGRF Family
I am so so sorry. My heart breaks for your loss. I will never forget Hannah. I know that her light will someday save the lives of other children. Love to your entire family.
Carrie, Robert, Ethan and Abby,
Their is a very special place in my heart that belongs to Hannah and only Hannah. My fond memories of playing with her, working with her, cuddling her and loving her reside there. They can’t be replaced by anything else. She will always and forever be the sole occupant of that space. I can’t imagine the emotions that y’all are facing and will face for a long time to come. I feel comforted knowing her body is peacefully resting. I love y’all deeply and will continue to pray. Huuuuuge hugs from Texas.
Love,
Jenny
My words feel so very inadequate, but please know I am praying for all of you. My only comfort is that Hannah is now at peace, as you said, and was surrounded by love. I hope your memories of her laughter bring your heart some comfort and know there are so many lives Hannah has touched. A lot of good will be done in her name and no one will ever forget your sweet girl. You and your family, Carrie, are truly angels on earth. Sending you much love and prayer – Love Susan (from KIT).
All my love and prayers of comfort and healing for your broken hearts are with you during this horrible time. I hope the happy memories sustain you when you feel you can’t take another moment of pain. The blessing of your time with her will never be forgotten. Hold tight to each other as you navigate these painful waters.
Love,
Gail (former UW member)
I am so sorry. Your family is in my thoughts and prayers.
Carrie, like so many others, I have been reading about Hannah and her journey for some time now, from afar. I don’t know what words I could possibly say that would comfort you at such a time, but I want to let you know just how much your family and Hannah have touched me. My heart is broken for you all. I know there’s a Hannah-shaped hole in your heart that will never be filled, but I hope some how, some way, you can find peace like she has. My thoughts and prayers are with you and your family.
Dear Carrie and Robert Hello from Paul.
Im so desperately sorry for your loss of a most wonderful little Lady who has so inspired so many. as has her Parent’s. giving hope and inspiration to countless others like no other.
Thank you for letting us know and that Hannah was in your arms. and with all her Family. Much love care and respect to all the Family.
I am so sorry for your lost Carrie. Hannah is really in a better place now. She meet with my Emilka there. And I hope they both happy and we will met them one day. Love you.