The Thrill of Momentum

Stealing Halloween candy wrappers, 2010 ~ "This works for me!"

I have met some incredible people over the past month or two who have shared their experiences with building a nonprofit here in Las Vegas.  Organizations such as Make a Wish, Cure 4 the Kids, Nathan Adelson Pediatric Hospice, etc., have all opened their arms and have agreed to work with us as partners in mission.  To have this kind of support, so early after our formation, is overwhelmingly positive.

But it doesn’t just stop with those organizations, but other people who we have reached out to have enthusiastically offered their support of Little Miss Hannah by way of hosting events for us, helping reach out to others to help spread our mission, and some incredibly exciting celebrity connections.

It has been so cathartic for me, so uplifting to be able to talk about Hannah, talk about Ethan and Abby, and share why our mission is so important to me.  And to see it responded to SO positively – not just a “oh, okay, that’s nice” but with such genuine acceptance is…it just is amazing.

Yesterday, I found myself needing to visit Hannah at the cemetery.  I still go at least once or twice a week, but yesterday I just HAD to go be with her.  I find that when so much good is going on with LMHF, by talking about her and LMHF so often, that it takes away from my “Me and Hannah” memories and moments.

I still need my “Me and Hannah” moments.  Even though I can’t get them physically, just being able to go to the cemetery and sit there alone with her helps bring things into focus, being able to just let go and cry and tell her how much I miss her, tell her what people are doing to help us spread her story.

My focus on LMHF has to remain on MY Hannah.  With so much excitement and with the foundation coming together as quickly as it is, my heart needs to keep being able to have my “me and Hannah” time.

Fly Butterfly Fly

Butterfly that landed near us after the release

Today was the 9th annual butterfly release that Nathan Adelson Hospice, Hannah’s hospice group, puts together.   We were invited because a butterfly in Hannah’s name was purchased for this event by her social worker and lead nurse.   It touched us so much that they cared about her so much that they wanted her included in this event.

I have to admit that I have never been to a butterfly release before – for weddings, memorials…nothing.  I had an idea of what to expect, but I didn’t realize how beautiful it really was.

Abby (in purple) and Ethan (back to us, wearing blue) - front and center!

There were a few heartwarming speeches before the release.  Then one of the chaplains for Nathan Adelson brought all the children to the front, had them sit down, and shared a children’s blessing and shared the importance of the butterfly release.

Leave it to Ethan and Abby to be right there in front! (see video of release!)

One the chaplain gave the word to release the butterflies, hundreds of butterflies flew into the air!   I loved seeing Ethan and Abby’s reaction to all the butterflies giving flight into the wind!

After most of the butterflies were released, Daddy and I released the one we had for Hannah.   It was nice having a moment with all of us together with our Nathan Adelson social worker.

Seeing all those butterflies today, all in memory of people who have passed, was just so touching.  I loved that Hannah was flying there, among the others, spreading her wings and flying free.

Our keepsake - filled with seeds

Hannah's name in the program

The Giving Tree … keeps giving

Tonight we were invited to a book reading at Hannah’s infusion center.  I was iffy about going because I didn’t want to force the kids to go to an event that was mostly for patients and their families.

I keep questioning whether we belong at these type of events now that Hannah is gone.  I mean, Hannah is technically no longer a patient or is she considered forever a patient?  I don’t know what the “etiquette” is on this.

Am I even considered a “special needs” mom anymore?

I left it up to the kids if they wanted to go to the event.  It was a resounding yes, so we went.  It was hosted by Circus Couture, and Abby and Ethan were front and center next to Dawn Marie, the enthusiastic and fun book reader.

Reading "The Giving Tree" to Hannah

After the event, we headed home.  About halfway home, Ethan asked if we could go visit Hannah.  It was a strange request coming from him because 1] he has never initiated and asked to go to the cemetery, and 2] he was so adamant about going.  ”Please, we have to go!”   Of course, Abby joined in pleading us to go as well.  Daddy and I looked at each other, not understanding why they were both begging us to go.

We get to the cemetery right before sunset (closing time), and the kids sat down on either side of Hannah’s grave.  They took turns reading the book to her.   (They had never read a book to her at the cemetery before).

That was their plan.  They worked it out in the car together.  My two kids, who spend most of their waking time annoying the heck out of each other, came together to do this … on their own.

After they finished reading Hannah the story, I asked Ethan casually why it was so important to him that they read the book to her.  He said, “Because it was her doctor’s office, and she should have been there.  Since she couldn’t, I wanted to make sure she heard the story because she really would have liked to have been there and heard it.”

The Giving Tree by Shel Silverstein.  It gave me something very, very special tonight.

LMHF Embroidered Polo Shirts

We are in the process of creating an online store to be able to offer LMHF Polo shirts and T-shirts in the fall.   Until then, our LMHF Polo shirt distributor has given us the opportunity to do a batch of black and pink LMHF shirts.

If you would like a polo shirt embroidered with the LMHF logo, please place your order by May 4th, 2012.   Adult sizes are $20 each, kids sizes are $17.50 each plus USPS shipping. They will be shipped out mid May.

Men’s Black Polo Shirt


Ladies Pink Polo Shirt


Kids Polo Shirt

Men’s Black Polo shirt
with embroidered LMHF logo
Ladies Pink Polo shirt
with embroidered LMHF logo

 

Signs of Hannah?

This was the only personalized DVD they had hanging on a display

Before Hannah passed away, I was very skeptical about the world of spirits and interpreting coincidences as “signs.”   But since then, I find myself questioning my skepticism.

There are various signs that I see that make me think that just maybe Hannah’s spirit is truly around me.  The entrails from the fighter planes, the little purple colored hummingbirds that hang out in our backyard that I had never seen before, etc.  Just here and there, but nothing really stood out to me and said “Whoa!”

Until this past Saturday night.  Ethan was at his grandparents that night to spend boy-time with his cousin, so we decided to have a very Abby-centric day.  Just me, Daddy, and Abby.   I coached her volleyball game earlier that day, and then she and Daddy had gone to the movies.  We wanted to do something fun and difference so we decided to go down to the Vegas strip to the Fashion Show Mall and walk around.  You know, play tourist – this mall is HUGE!

She loved it because she was able to spend her birthday money at the Hello Kitty store, and got to walk down the fashion runway and pretend to be a model  (there was no show on, just the walkway was out).

The three of us went to California Pizza Kitchen for dinner.  While there, Daddy posted a check-in on Facebook that he was there for dinner “with his girls.”  Usually, he would say me and Abby specifically, but not this time.  Didn’t think anything of it.   We did end up talking about Hannah a lot during that dinner because Abby kept bringing her up in a lot of conversations.

After dinner, we walked about 200 feet and saw a vendor along the glass balcony.  All three of us stopped in our tracks.  It was a booth that sold personalized gift items.  Most of them were facing the other way towards where the most people are, but the closest one to us faced directly to us.

The name on the CD was “Hannah.”   It was a Mickey and Minnie Disney personalized Disney song CD.

Oh-my-friggin’-you-know-what!   We all just freaked out, and Daddy took this picture.  Looking more closely at the booth, there were no other Disney CD examples.  Just that one – with Hannah’s name on it, spelled our way!

Then, to top it off, Abby wanted Jamba Juice for dessert.  Weird request, all the way at the other side of the mall.  But it was Abby’s night, so we were off for Jamba juice.  We get there, and Abby immediately recognizes a bag of white cheddar Pirate’s Booty – this was Hannah’s favorite snack, favorite flavor even, when she was eating by hand!   Abby wanted a picture with her and the bag.

This one was really hard to believe it was all coincidence.