She has been gone four months now. Today was a ROUGH day for me. I have been in just a funk all day long. Even started crying at the restaurant at lunch … no clue where it came from, but it just started. I keep hoping that the 4th of each month will get […]
[Continue reading...]To the Gaucher type 2/3 community

At least 5 to 7 times a week, someone finds Hannah’s blog by searching “Gaucher type 2” or “Gaucher type 3” or some variation thereof. Since she passed away in December 2011, I still receive emails from newly diagnosed families looking for support and information – and I am so glad to be able to […]
[Continue reading...]Big Sister Love

I was cleaning up Abby’s room today, and I came across this letter she wrote to Hannah. Apparently, she writes to Hannah quite often. I can tell by her conversations with me and the other letters she has written that she is still incredibly heartbroken. But like me, she puts up a brave face. Last […]
[Continue reading...]Five stages of grief…yeah, right

Every one of us is taught that there are five stages of grief. I know I was. Denial to anger to depression to bargaining until you finally reach “the goal” of grief, which is acceptance. Maybe it is because my situation is unique or maybe because I am just wired differently than the rest of […]
[Continue reading...]Understanding Sibling Loss
One of our biggest concerns during Hannah’s illness, especially during the last few months of her life, was how her disease and her loss of skills and interaction was affecting her older brother. There were very few articles published anywhere on the internet, and the ones we found were mostly discussing sibling loss as […]
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