Our Fight against Gaucher's Disease type 2 or 3
The Little Miss Hannah Foundation is officially in business. I can’t tell you how AMAZING this feels. Hannah’s legacy is real. It is tangible. It is “in the books.” We have done SO much work on the setup of our organization, and there is still so much more to be done before we can start serving […]
[Continue reading...]I belong to this grieving mothers board, and there was a topic about moms who have had dreams about their children they have lost. So many moms have had dreams where they felt their child was visiting them or in the dream their child was alive. Where can I get these dreams? I have […]
[Continue reading...]We have had a crazy nonstop weekend. Started first thing Friday and didn’t stop until about 10 pm last night when we got home and rushed the kids off to bed for school. It was all good things. Parties, shows, friends, etc. Even made two trips to the cemetery to visit Hannah to redecorate her […]
[Continue reading...]Over the past week, there have been a LOT of search requests coming to my blog looking for a combination of the following keywords: Hannah with the rare disease that met Selena Gomez. At least a hundred or so in the past week. Apparently there is a teenager named Hana Hwang who also has […]
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Someone once told me that the children in Heaven play on these streaks because it is one of their only connections to our world. “Hannah is out playing”. When Abby and I see the streaks coming from the fighter planes, we always think that Hannah is out playing. When there is more than one plane […]
[Continue reading...]If you had told me four years ago that I would be knee deep in a world where children fight like warriors, parents fight like superheroes, and where my heart and passion would be on the front lines with these families and the amazing medical teams and organizations that help families fight and survive…I would […]
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