I’m very excited about this new writing “gig” I got. It doesn’t pay anything really, but I thought it would be good exposure not only for Hannah, but it would give me a chance to help other local families by sharing their stories, providing information on upcoming local events and conferences, and become a stronger […]
[Continue reading...]Fundraising dilemma
15 Feb by
I’m so ready to start coming up with fundraising campaigns to get money for research for Hannah. Being in the midst of this “economic climate,” it is going to be even harder to raise money. Even though I feel better that we are still more likely dealing with a type 3 progress of the disease, the […]
[Continue reading...]Hubby and I forgot Valentine’s Day
14 Feb by
I can’t believe it…Hubby and I both forgot about Valentine’s day… no cards, nothing… THAT is a first! Oh well, maybe next year…
[Continue reading...]Harvard Team Makes 10 Disease-Bearing Stem Cell Lines
14 Feb by
http://www.cell.com/abstract/S0092-8674(08)01001-5 Tissue culture of immortal cell strains from diseased patients is an invaluable resource for medical research but is largely limited to tumor cell lines or transformed derivatives of native tissues. Here we describe the generation of induced pluripotent stem (iPS) cells from patients with a variety of genetic diseases with either Mendelian or complex […]
[Continue reading...]Do babies remember songs they heard in utero?
14 Feb by
I didn’t sing much while I was pregnant. But I did sing one song all the time. Twinkle, twinkle, little star. Since Hannah was born, she has always given me some kind of reaction (lately a huge smile) every time I sing that song. I even sang it to her while she was on her […]
[Continue reading...]If a parent is willing to try to save their child’s life, why the B.S.?
13 Feb by
As many of you know, I’m come to know and deeply care about Addi and Cassi Hempel, as I have talked to their mom on the phone on a number of occasions. She, as an advocate mom, is what I aspire to be for Hannah. They have Niemann Pick type C, and their mom is […]
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