There, I said it. I’ve been blowing this off for the past two months, but after Thursday’s visit, I just can’t deny it anymore. Hannah has always acted fine, so in my mind, I knew she was fine. But the truth is, she isn’t fine. There is something seriously wrong with her, and at this […]
[Continue reading...]New symptom
25 Sep by
Went to TCH today for followup with the hematologist. Last time, he was very carefree and not very proactive with Hannah because it seemed as she was getting better on her own (hence the 5-week later followup). That changed today. It seems that since the ultrasound 3 or 4 weeks ago, her liver is now […]
[Continue reading...]So much to update…
18 Sep by
Ike Wow, we made it! We were right in the eye of the storm, and we ended up hunkering down in the walk-in closet under the stairs. It really worked out great. Fortunately, the eye of the storm with the strongest winds hit after the kids went to bed very, very early in the morning. […]
[Continue reading...]What to do…
29 Aug by
We got the ultrasound and Doppler results. Her spleen IS enlarged (no, duh) and is 8 cm, which according to the report, is 2 standard deviations above the upper end of normal. Not sure how much a standard deviation is though. I need to contact the hospital she was born at to get a copy […]
[Continue reading...]Finally got the ultrasound and Doppler done
25 Aug by
Today was just a mess… I left the house at 7:15 AM to try to make it downtown for our 8:45 AM appt for Hannah’s ultrasound and blood flow study. I was SO exhausted, as I don’t think I got more than 4 hours sleep that night before. We didn’t get checked in until 9 […]
[Continue reading...]Exhausted!
21 Aug by
Daddy had to go out of town for a big conference on Tuesday, and he won’t be back until Friday late afternoon. Taking care of three kids, especially with one being a newborn and on an every 2-3 hour eating schedule, is just wearing me out!! I cannot WAIT for him to come home tomorrow!! […]
[Continue reading...]
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