Well, the IVIg transfusion didn’t seem to help at all so far. The nurse practitioner talked to us for about 30 minutes, and it is extremely rare not to see any boost in platelet counts after IVIg with NAIT or NIIT, which means, it either isn’t NAIT (which is most likely) or that we may […]
[Continue reading...]Neonatal alloimmune thrombocytopenia
1 Aug by
Severe neonatal alloimmune/isoimmune thrombocytopenia. That is the working diagnosis for Hannah’s main platelet problem. The viral panel came back this afternoon, and thank goodness, her CMV (cytomegalpvirus) was negative. It also causes similar symptoms to what Hannah has, but it comes along with hearing, vision, and possible neurologic problems. So NAIT is the diagnosis of […]
[Continue reading...]Friday AM numbers
1 Aug by
Bilirubin only went down .1 from 11.4 to 11.3. I wonder if they are going to put her back under the phototherapy lights? Platelets went down only 1 point to 41,000 from 42,000. I guess I should take solace that they didn’t go down dramatically again like they did yesterday (drop of 12). I know […]
[Continue reading...]Thursday PM numbers
31 Jul by
Unfortunately, her platelet count has dropped quite a bit from this morning … from 54 to 42. I’m heartbroken. I want so much to have her healthy and bring her home. I had the hardest time putting her back in her crib tonight. Her bilirubin did go down, just a bit from 11.7 to 11.4. […]
[Continue reading...]She’s here!
28 Jul by
Everything with our gorgeous little girl was going well the first couple of days. She was able to room-in with me, and I loved having her right there. DH spent the first night with us, and I couldn’t take my eyes off her (My parents came into town and the kids slept over at their […]
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