The hospice social worker came by for a visit today. She mostly works with the kids, but it was nice to sit down and talk to her for a while before she spent time with Ethan and Abby. We started talking about Hannah, our plans we have made, etc. I shared with her that […]
[Continue reading...]Laying the Foundation
17 Nov by
I have decided to convert Hannah’s “Hope for our Hannah” cause to what will be the cause page for our Little Miss Hannah Foundation. (Unfortunately Facebook won’t let me change the name because we have over 10 members). Please take a moment and join, ask your friends to join. Over 2400 people have supported […]
[Continue reading...]So conflicted…
16 Nov by
Hannah’s breathing continues to become more shallow each day. She is starting to tolerate her feeds less so we have started decreasing her caloric intake (down about 15% from her normal – not doing a Terri Shiavo). She is requiring daily enemas to keep her body moving so her stomach doesn’t continue to […]
[Continue reading...]Pink and Yellow and Minnie
14 Nov by
Hannah has had a pretty mellow day. We were given the option of going up on the valium from every 6 hours and using it every 4 hours if she needed it. Because of this, we were able to keep her from getting agitated for a good 24 hours. As a matter of […]
[Continue reading...]Fear and apnea
12 Nov by
For the past 36 hours, Hannah has had these weird mini episodes when she was awake. Up until this afternoon, I just chalked it up to a weird form of agitation, but after thinking about it more (and having her nurse and Daddy notice it to), we now think it is more. She would wake […]
[Continue reading...]A Sigh of Relief
11 Nov by
We made it. You know how you sometimes don’t want to mention something for fear that you are going to jinx yourself and then it will happen? That is exactly how I felt these past two weeks. We have had three birthdays in the past two weeks – mine, Ethan’s, and Daddy’s (which was […]
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