A bit less than a week ago, Hannah started developing this red rash on the outside of her left elbow. It wasn’t hot to touch, inflamed, or pussy. It didn’t even seem to affect her much. It was just a rash. Going back in our heads as to “what has changed” in the […]
[Continue reading...]The mysterious bump
16 Aug by
Two days ago, Hannah’s nurse noticed a little bump under her left armpit when she was giving her a bath. You have to feel for it, but you can touch it, and it seems to move a bit. It doesn’t hurt her when you touch it either. Yesterday morning, this bump was clearly […]
[Continue reading...]Sleepy time
14 Aug by
One of the other issues that was brought up with Dr. Sanger a few days ago was that of Hannah’s lack of sleep. Including naps, she averages about 8 hours of sleep a day. Rarely more, sometimes less. We explained to him that sometimes when she is sleeping and wakes up in the night […]
[Continue reading...]Movement Disorder Specialist visit
14 Aug by
We met with Dr. Terence Sanger down at Children’s Hospital Los Angeles a few days ago. We is one of the leading pediatric movement disorder specialists in the country, and we went with an open mind, not expect answers, just hoping for some, well, hope! It went better than we expected! It was very […]
[Continue reading...]Loss of words
7 Aug by
I received an email from another special needs mom a couple of days ago asking me if Hannah was “okay” and if everything was alright because I don’t seem to be posting as much as I used to. Then as I look back at my posting for the past few months, it does seem […]
[Continue reading...]Party time!
1 Aug by
We had Hannah’s birthday party this weekend, and it went off without a hitch! Our friend’s hosted the party at their house, and my in-laws provided all of the food and the fantastic Mickey and Minnie beach party cake (with the exception of some amazing ribs cooked by our host!). We ended up having […]
[Continue reading...]
Latest Comments