Shortly after I posted my blog last night, we went into crisis mode with Hannah. She was so congested in her trach all of a sudden that she would wake up choking and then go into a breath-holding spell out of panic. Even if I was able to clear out her trach, she had problems […]
[Continue reading...]Something is going on
8 May by
I remember taking this picture back in January. Hannah was sick, just not feeling well. If I had taken a picture of her today, it would look very much the same as this one. It started a couple of months ago. We noticed she wasn’t herself, but it was not very noticeable. Then a […]
[Continue reading...]Getting back to routine
5 May by
I knew this trip was going to be hard on Hannah. After all, she isn’t used to having such jam-packed days in a row like we did in Florida. But I didn’t expect her to catch a bug of some sort. She has been running a low-grade fever for a couple of days (today […]
[Continue reading...]We are home!!
1 May by
We are back home from an amazing, incredible, emotional, and life-changing trip at Disney World and the Give Kids the World resort. We are all exhausted, Hannah most of all. The trip definitely wore her out, and it will be good for her to get back into a routine after a jam-packed week. We […]
[Continue reading...]Just a lot to take in
24 Apr by
In less than 8 hours, the limo that Make-A-Wish arranged for us will be picking us up to take us to the airport for our Disney World trip. Ethan and Abigail were so excited that they didn’t fall asleep until 11 pm. The bags are packed for the most part, only the toiletries and […]
[Continue reading...]Hiccup in Disney plans
22 Apr by
We had our meeting with the Make-A-Wish volunteers tonight. They came to bring us our itinerary, talk about the trip, and even spoiled the kids with some really cute pajamas! Abby and Hannah got matching Minnie Mouse pajamas, and I KNOW that is a picture waiting to be taken. They also got Hannah an […]
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