This road ahead is not paved

It has really been a rough couple of months.  I sat in my office tonight after another stressful and nonstop day, and I looked at the piles and piles of paper that I need to start to organize.  Much of it has to do with Hannah but not all of it.   I would need about […]

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Rotavirus attacks!

Hannah has been in the hospital since Saturday.   I just talked to Daddy, and she has been doing really well over the past two days!  She is tolerating her feeds well, she is not throwing up anymore, and she looks good.  Even better, she is almost done with the Ativan withdrawal! As for me, […]

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Back in the hospital

Yesterday was very rough.  Quite a few exploding diapers with water diarrhea and a couple of times, she spit up what she was being fed. Our day nurse yesterday never commented on it, and looking back, there were so many red flags that he should have caught and should have sent us to the ER […]

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Ativan Withdrawals suck!!!

We have been going nonstop since we brought Hannah home on Tuesday.   We were fortunate enough to get 11-hr a day nursing on Wednesday and Thursday, and we will get more nursing this weekend (8 and 6 hours), and then 11 hours a day Monday through Wednesday.  Then it will be a fight with […]

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HOME!

Okay, so we actually got discharged yesterday, but it has been nonstop crazy here! I will elaborate more later, but we are figuring things out here.  Lots of follow up appointments to be made.  Lots of supplies to be organized.  Thank GOODNESS for home nursing and our 12 hours a day for the next week […]

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Vegas, Day #42, Full of Smiles

Now that we have been here for over 24 hours, we have noticed a huge change in Hannah’s personality.  She is just full of life now.  She smiles a lot at us, she cries when the nurses come in (like she used to cry when people she didn’t know well came close to her), and […]

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