Because Hannah was able to get some rest last night, the docs decided to give her one more day off on weaning any meds. She spent the entire day agitated, uncomfortable, and just not happy for the most part. One of us (me or Daddy) needs to be right at her side all day long […]
[Continue reading...]PCU, Day #34, Withdrawal Hell
19 Jun by
Yesterday was a tough, tough day. Good news is that Hannah’s choreathetoid movements are now finally starting to show signs of lessening. This gives us hope that these neurologic movements are only temporary, most likely drug induced. Bad news is that now we are starting to wean the final sedatives (pentobarb, methadone, and ativan), the […]
[Continue reading...]PCU, Day #32, GTube Chaos
17 Jun by
What a morning, literally! Hannah fell asleep last night and 9:30 pm and woke up at 2:30 am. She was just not a happy camper and could not get comfortable because her movements started up again and kept her awake. Finally at around 4:00 am, the nurse put Hannah into my lap on the rocking […]
[Continue reading...]PCU, Day #31, More Progress
17 Jun by
Another good day. I love the fact that these past three days have been wonderful in terms of Hannah making progress, regaining her personality, and beginning the recovery process. Early this morning, we put my laptop next to Hannah as she laid on her side in her crib, and we turned on Wiggles on my […]
[Continue reading...]PCU, Day #30, New Floor, New Hope!
16 Jun by
No, that is not a typo — we are in the PCU now! (Progressive Care Unit). Room 711. A huge private room with two TVs, a private bathroom, and a couch that pulls out to a bed. We got moved up here at 4 am this morning, after the night attending felt that Hannah […]
[Continue reading...]PICU, Day #29 (part 2) – Moving on up!
15 Jun by
Today has been a good, good day. Hannah went 6-1/2 hours on her CPAP trial, and she did great. The docs decided to stop it because it was her first trial post trache about 10 days ago, and they did not want her to overdo it her first time. But she handled it great! […]
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