We didn’t make it again to the nursing home, but this time it had nothing to do with Hannah. Abigail seems to have caught a 24-hour stomach bug of some sort and had been vomiting every-hour-on-the-hour for almost 12 hours straight! She seems a bit better today, but there just was no way that we […]
[Continue reading...]Nursing Home Visit – attempt #2
21 Jan by
After a horrible attempt for a road trip last month to try and get our nursing home overnight stay requirement filled so that Hannah can be approved for the medically depedent children’s program (and medicaid), we are going to try again this weekend. Last time, we only made it about 45 miles of a 200 […]
[Continue reading...]Liver and Nutrition Woes
21 Jan by
We met with Hannah’s liver doctor today, Dr. Carter at TCH. We actually had not seen her since before Hannah was diagnosed. I brought her up to date on everything that has been going on, including how Dr. V was concerned about some of her elevated liver function levels from as far back as Sept […]
[Continue reading...]Hannah and the kids
17 Jan by
Ethan and Abigail are home for a 4-day weekend. It feels like they just had their 2-week holiday break! Even though the chaos in the house gets a bit overwhelming when I have all the kids home for multiple days, I have really seen a huge change in Hannah when they are here. Ethan and […]
[Continue reading...]My Vtech baby
14 Jan by
Hannah has quite a few favorite toys. All of them are ones that are cause/effect and make noise/music when pushing buttons. As I am looking at them, I realized they all have one thing in common. They are all VTech toys! After going through their website just now, I realize I could spend a few […]
[Continue reading...]So much going on…
14 Jan by
There has been so much I have been trying to organize in the past few days that I’m just going to jot it all down now, and I will come back and elaborate later on. Visit with GI doctor. Dr. V., Hannah’s gastro doc, is concerned about her old liver tests that showed a rise […]
[Continue reading...]
Latest Comments