My inlaws have come down to visit us for the Thanksgiving holiday weekend. It has been a wonderful visit so far. Abigail and Ethan have loved it most of all because they have been spending all their time with their grandparents. It has been SO good for them to be able to get away from […]
[Continue reading...]Just two clicks could make a difference
24 Nov by
Would you give just two “clicks” of your time to help Hannah? Chase Financial institution is giving away $25,000 to charities based on the number of votes they get. When you have such a rare disease like nGD, you don’t have the support (financially and people-wise) that the bigger causes do. Here is our chance […]
[Continue reading...]Getting ready for “Hannah School”
23 Nov by
Ever since Hannah’s yearly DAYC evaluation, I’ve felt very defeated in terms of her progress. Especially in the cognitive and communications areas, which really did not advance at all in the past 4 months. I keep asking myself that with all this therapy, why was there not an advancement in this area? So when I […]
[Continue reading...]She kissed me!!!
14 Nov by
Hannah now responds to a new request!!! When we say “Kisses,” she brings her face forward and puts her face on ours. Then we give her a kiss. OMG!!! How awesome is that, seriously!!! She even does it with Ethan and Abigail now, and they just eat it up!! My baby girl kissed me on […]
[Continue reading...]Big life changes in our home
14 Nov by
As I have said for quite a while, it has been a really crappy few months here. But there is finally some light shining for us… My husband just got a new job! Actually, it is the same company, but it is a different division. Instead of having to drive to downtown Houston every day, […]
[Continue reading...]DAYC Annual Review, 15-1/2 months old, and therapy thoughts
14 Nov by
We had our yearly review of goals and IFSP (Individualized Family Service Plan) with our Early Intervention team this week. I have been dreading it because I hate what it represents…the quantitive evaluation of my daughter and her delays. Informally, we do it every 4 months to continue to monitor her progress. Normally, they do […]
[Continue reading...]
Latest Comments