Attempts at socialization

One of the things that we are starting to feel is necessary is for Hannah to start socializing with other children around her age.  We don’t have any friends with young infants, so the only real experience she has had are friends of her brother and sister, who are obviously older than she is. We […]

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My attitude is changing

I never realized how much of an impact the NIH trip had on me until recently.   I went from feeling like her condition was so serious that we would only have a few months left with her (type 2-ish) to feeling like maybe this disease isn’t progressing as fast as I had originally feared.  Maybe, […]

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Stuck in a time warp

I’ve become much more aware recently about the widening gap between Hannah’s ability and other children her age.  When the MDCP nurse asked me if she follows commands and understands what we say, I just shook my head.  There is just ONE command that Hannah recognizes and will respond to.  “Uppies.”  If I say “do […]

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The infamous list

Hannah and I met with a nurse from the DADS (Department of Aging and Disability Services) office regarding getting Hannah on the MDCP (Medically Dependent Children’s Program) program sooner than the 9 years that the waiting list is currently at.  We are hoping that she will qualify for a “waiver” program that will allow us […]

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The numbers are in

Hannah turned 13 months old yesterday!!   I would have posted, but it has been crazy with Ethan and Abigail starting school this week. We saw Dr. B., her pediatrician, today.  We actually haven’t seen him in his office in two months!  We went from visits every two weeks to every month.  Now we are finally […]

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Just another instance of Hannah capturing hearts…

Our developmental therapist, who we see each Friday afternoon, told us that she was changing jobs within ECI.  At first I was excited for her because this was something she wanted, but then it hit me that we would lose her as a therapist, as she would no longer be doing this anymore. Before I […]

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