She’s at peace now

Hannah passed away at 10:10 pm on Sunday night, December 4th, in my arms after a weekend surrounded by all of her grandparents, aunts, uncles, cousins, and good friends.


  1. My heart breaks for you. There are no words that can express how sorry I am for the loss of your precious Hannah. Your family is in my prayers.

  2. Melissa Ingold says:

    My heart goes out to you and your family as you go through this difficult time. It feels like a nightmare right now and it’s all you can do to get through each day, but it does get better. I promise. And I know my sweet baby Kyle was there to welcome her home.

  3. I am so sorry to hear of Hannah’s passing. She fought the good fight, this disease is so brutal and unfair for these little ones to endure all that they do. You are all in my thoughts and prayers!!! Godspeed Hannah

  4. Amanda says:

    I have been following your blog for an incredibly long time, off and on through times of no internet access and came to love Hannah and your entire family. I have been checking daily hoping that it wouldn’t be the day for weeks. I am greatly saddened by this news, but know that she is happy in heaven running around. You will all be in my thoughts, particularly through the next several weeks which I know will be very challenging. I will never forget reading about Hannah and knowing the joy she brought to your lives.

  5. Randi says:

    What more can I say than what has been said above. Hannah was a fighter sent her to show us what true grit and absolute love is. She will forever be in my heart in a special spot saved just for babies like her. She was sent here for a purpose if only to give you all a touch of true unadulterated love. She is at peace now. Now it is your turn to begin the healing. Mourn her for the time you need and then remember all the smiles she gave and give some for her.

  6. Lenny says:

    Keith I know sorry can’t bring her back. Its hard to say the right things and nothing but time will make it easier my step son was killed @ just 20 months old he was run over by a truck while he was with his father on nov 5 last year irs a hard road that you are going to face brother just know I’m here for you man. We were best frinds growing up and ill always be your friend. Call me bro 7024962039

  7. Laura says:

    My heart is just breaking for you all. I am so incredibly sorry for the loss of your beautiful Hannah. Please know you are in my thoughts and prayers.

  8. Lenny says:

    I’m sorry robert I thought hannah was keiths daughter. thoughts and prayers from my family to yours brother. Been a long time man sorry you had to see my name pop up in this stuation. You can call me any time as well man! Your facing a tough road and a long one aswell.

  9. Lenny says:

    I’m sorry robert I thought hannah was keiths daughter. thoughts and prayers from my family to yours brother. Been a long time man sorry you had to see my name pop up in this stuation. You can call me any time as well man! Your facing a tough road and a long one aswell……….. .

  10. Denise H says:

    My heart is just breaking for you and your faimly. Hannah truly stole my heart and now it just aches at her loss.

  11. Carrie,
    Thank you for sharing the story of your little miss Hannah. Your battle was nothing short of courageous, full of love, life, hope, anger and now, sadness. Your story is one that everyone should read because it is true testament to the power of love, the sometimes helplessness we feel in parenthood and the resilience and fortitude it takes to fight, even when it feels hopeless. You fought the good fight mama. You did everything you could. I will help you with your Little Miss Hannah foundation in any way that I can from Massachusetts.

  12. Julia O'C says:

    I’m so sorry. I just so, so sorry.

  13. Karen says:

    RIP Hannah. Even thinking of you from down under in Australia. Our small Gauchers Community are thinking of you.

  14. Claire says:

    I’m so sorry for your loss.

  15. I dedicated my prayer time Sunday to your family. I have been following your story for a little while now and you have all touched my heart. I am sure Hannah is now at peace and comfort in Heaven. I know it has been hard and will continue to get harder for your family for some time. Hannah (and everyone who has read your story)knows how much you all loved her and how well you took care of her during her time with you. I will pray that you and your family will be able to find peace and continue to share Hanna’s story with the world. I know you will be able to touch many others hearts with the knowledge you have and the love and dedication you have for your beautiful angel.

  16. Hannah and you Carrie opened a whole new world for me. I will never be the same person again. I am a phycisian from Greece. She will trully be remembered, don’t forget that. I wish I could have seen her smile. I wish all the children in this world were so much loved. I know that there are not enough words and not enough tears. Please, try to feel surrounded by all the love and thoughts by us people who have been touched and moved by your story. So long little star Hannah

  17. I am so, so sorry. My tears and prayers are with you.

  18. Sheryl says:

    Dear Robert, Carrie, Ethan and Abby:

    What an honor it has been to assist your family during this difficult time. Your website about Hannah’s journey is inspiring. I have no doubt that some day a cure will be found because of Hannah and your willingness to share her story.

    Please know that Hannah and Minnie are safe.

    My thoughts and prayers are with you and your entire family.

  19. I am so sorry for your loss, but I hope that you are able to take some small comfort in the fact that Hannah’s now free of pain and the limitations of her disease. Those thoughts were the only things that got me through the first days after my grandfather’s passing earlier this year (he raised me and was really more my dad).

  20. Lisa Egan says:

    My heart is hurting for your family. You are in our thoughts & prayers. My husband Travis & I had the wonderful pleasure of meeting your family for lunch one day at City Walk years ago. You have been in our thoughts ever since.

  21. So sorry to hear this sad and very emotional story. We have never met, but you are a friend of my Daughter. (Susan B.) I saw the link to your web page and wanted to comment. My thoughts and prayers go out to you and your entire Family tonight.

    God has another Angel.

  22. Now she is free of pain and suffering. She will live on in the hearts of all who have known and loved her, and that includes me.
    Even though everyone knew this would happen soon, it is still very very hard to hear. My heart stopped for a second when I read what I
    had been dreading for a while now.
    Now Hannah is an official angel. She has been many people’s angel for a long time.
    I am sure she is looking down and smiling at all who miss and love her.
    God bless her family and all those who helped her live a short but very meaningful life.
    Hannah and her family have done so much to help all of us become aware of GD2 and the struggles of children with
    terminal illness. The amazing good you have all done will help many for years and years to come. Hannah might have lived a short life, but it
    was quite a full and meaningful one. She may have done more in a few years than many do in decades!
    You are very loved and missed littlehannah

  23. I am so sorry for your loss. I am glad that your family could come and see and talk to her as she was ready for her final journey. May G-d comfort your family as you start this new journey without Hannah.

  24. Missy says:

    My heart aches for your family. Hannah fought so bravely, as did her mama and entire family. Your family will remain in my prayers as you move forward. It has been 14 1/2 months since we laid Samuel to rest and I can say that the days, months, and years ahead will be difficult. Always remember that you all did your best for Hannah. You are the best mother that she could have ever hoped to have and she loved her family so much.

    You are in my heart.

  25. She’s in loving angels arms now who will take good care of her until she sees you again. My prayers are with the family.

  26. Beate says:

    To The Ostrea Family;

    I am so sorry to see this sad news. You may or may not remember me, but I took care of Hannah for two nights at St Rose Siena a few months ago. I will never forget her! All the kids we care for are cute in their own way, but Hannah was absolutely precious. I remember how she recognized your voice and how she would smile at you. I also loved her beautiful dark curly hair.

    You are a wonderful family that obviously loved her intensely and was totally committed to the best care for her. Though I did not spend much time caring for her compared to other nurses in your lives, I distinctly remember you all and Hannah and the impression of total love and compassion you left on me. I wish you peace in your grieving and ultimately some joy in your sorrow. Thank you for the privilege to care for your Little Miss Hannah.

  27. Laura says:


    My thoughts and prayers are with you and your family. Hannah has finally sprouted her wings as a beautiful butterfly. Whenever I see a butterfly I will remember Hannah’s smile, her fight and her spirit. Please know that you have shown grace and honesty during every step of your journey. Those who have had the opportunity to know you, your family and Hannah have been blessed in countless ways.

    Laura Romero

  28. Titi Lili says:

    My prayers, thought and heart is with Little Hanna, the angel took her! My blessings to all the family and little Hannah! I met Little Hanna through Bertrand, my great-nephew and loved to see them together!

    Love from Puerto Rico, Titi Lili

  29. Melissa says:

    Praying for you and your family as you spend the next few day, weeks,months and years missing Hannah.

  30. I’ll alwas remember the sweet little girl who shares a birthday with my Leo, and whenever I see Minnie Mouse, I’ll recall how happy you said that made her. I’m lighting a candle right now but no light will ever be greater than her light was for your family.

  31. Anita says:

    So sorry for your loss and praying for your family. Hannah was such a beautiful and brave girl and her story has touched so many families. Thank you for sharing her story and teaching us all about the devastating effects of this disease. She was blessed to be born into such a loving family and you were all so blessed to have her. She is dancing in heaven now!

  32. I sending my thoughts and prayers to you and your family.Although I did not know little Hannah I felt a sense of knowing her.As a mother of 2 children that passed away due to Gaucher disease type 2 I know deep in my heart that Hannah is in Gods garden as he only takes the most precious children in his garden. I look at my childrens death as if it was the day they were given birth,birth of no pain,no doctors,no drugs,no hospitals,Little Hannah did not die on Dec 4,2011.She is finally living Happy Birthday Hannah you are in the most wonderful place.

  33. Sandra says:

    Fly, fly, fly sweet angel baby.

  34. i am so sorry to read this. 🙁

  35. So sorry to read this. My thoughts and prayers are with you and your family. Hannah will always be remembered and her fight against Gaucher is an inspiration and hope for all.

  36. Our thoughts and prayers are with you during this difficult time.

  37. I am so sorry. I am at a total loss for words. My prayers are with you guys.

  38. Ann Hansen says:

    My heart aches for you. I wish you strength during this time and hope you find some peace of mind in knowing you gave Hannah a great life and gave her the Best every Day of her life.

  39. I am so very sorry for your loss. Hannah has touched so many lives.

  40. So sorry for your family’s loss.

  41. I will never forget that beautiful face. My heart is broken even though I think she is in a better place not suffering any more.I am so sorry for your loss, so sorry! No words can ease that pain never. Keep all the memories and move on. Remember always she was a strong fighter and we all loved her so much. Stay strong for Abi and Ethan please. It is so hard for them now. My thoughts are with you all.

  42. Deborah Elstein /Shaare Zedek Medical Center / Jerusalem says:

    Ari Zimran and I are saddened by the death of your Miss Hannah..she was indeed a poster child in the best sense of the word. We pray that you and your family will find comfort in knowing that you never stinted in your care and love for her. May you know no further sorrows, Debby

  43. Nana Waggs says:

    Dear Carrie and Family ~ My heart just sank as I read your words of your precious Little Miss Hannah’s passing. What a special gift she gave you indeed as you held her tenderly those last moments. I never wanted to open your Blog and read this post….in my heart I just wanted her to be with you as the healthy, giggly, eyes-smiling Hannah. My prayers for you each as you face the changes in your lives….we won’t ever forget your precious daughter and the brave fight you each fought to keep her quality of life at it’s peak. Your unselfishness these last weeks is an incredible witness of a Mommy’s true love for her child….your Perfect Little Miss Hannah.

    Ginger and Family