Archives for June 2012

Dealing with the nights

Hannah on Dadd’s lap enjoying the fireworks – July 4, 2011

July 4th is coming up…

To me, it marks one year since Hannah was able to enjoy her last holiday with us.   She was still smiling, still very interactive, and she was very intrigued with the fireworks in the sky.   Just a couple of months later, her health would deteriorate so horribly.

To me, it also marks seven months since she passed away.

The nights are still so very hard for me.  Yeah, I take something to help me fall asleep, and I usually am asleep by midnight or so.   But before then, I try to read, play games on her iPad, anything to try and keep my mind busy.

But then the moments come where my heart takes over my head…it is hard.  I look at her pictures constantly.  Watch her videos.

I miss her so much.  I am desperately trying to remember what she smelled like, how her skin felt…how it felt to have her hand holding mine.

The memories of those little things are getting harder and harder to remember, and it is killing me.   The pictures and the videos and the memories just aren’t enough sometimes.

I want her back.  I want her back so bad.

I keep having to remind myself…she is gone.  Gone.  There is no way to bring her back to me.

Abby and Hannah, holding hands — end of November, 2011

At night, when I think of her, I will find that I have tears in my eyes, not even realizing that I was that emotional.

Almost every night, I ask her to come into my dreams.  To let me see that she is okay.  To be able to spend some time with her, even if it is in a dream.  But it has yet to happen.

I hate that it is getting harder and harder to remember all those little things about her.   I wish I took so many more pictures and videos of her … of those little things.

Forget the videos and pictures.  I just want her back.

Mission and Passion and Help

The birth of a legacy – the launch of the Little Miss Hannah Foundation

The countdown begins until the launch of our Little Miss Hannah Foundation on July 25th.

July 25th, what would have been Hannah’s 4th birthday.

We have been putting SO much work into the development of our foundation — from incorporation to nonprofit status to licenses and permits and all of the other business end of things.   I have learned SO much about what it takes to build a nonprofit.

I’m anxiously excited for our event on July 25th.   The people that have stepped up to support and participate in this event is just amazing.   We have a professional Las Vegas DJ providing music for the evening, popular kids groups donating their time and services such as Lego robotic building and a dance show (not at the same time.)   The District management group also has donated and helped in organizing – we are taking over their entire shopping courtyard!
Most of all, the enthusiastic friends and family members that I have working so hard, volunteering their time and energy to help me make the Little Miss Hannah Foundation into a reality.   They are going above and beyond what I could have ever hoped for.

But it the end, it comes down to awareness and fundraising.   I need to raise money in order to provide the services I want the LMHF to be able to provide.  In this economy, especially in Las Vegas, it is a rough feat to try and accomplish.  We have had a handful of amazing companies open their wallets to sponsor our event, thank goodness.   But we need more.

I am reaching out to all of you. Those who have followed our journey.   Those who have been touched by Hannah.   Those who believe that I can succeed in my mission for the LMHF.

We need personal and corporate sponsors for our event – $1000, $500, and $250 levels.
We need raffle items for our event – $50 retail value or more
Paypal or check donations  to go directly to provide services

My inspiration, my passion ~ Abby, Hannah, and Ethan. We miss you terribly baby girl!

I need your help.  Help to make this event a success.  There are so many families here with children fighting for their lives, going through the same journey as we did with Hannah.

Please help me, through our Little Miss Hannah Foundation, provide support and comfort for our local families who are faced with losing a child.  We can’t change their inevitability, but we can help them focus on enhancing the quality time they have with their ill child.   We can’t do it without your support.

I have been told I have a hard time asking for help.  But as a good friend keeps reminding me, “if you don’t ask for help, the answer will always be NO.”

So here I am.  Asking for help to create Hannah’s legacy, to make a change in this world.

 

Ethan’s 5th grade promotion and speech

My handsome boy, now a middle school kid.

He was the student speaker for his class, and his speech was absolutely amazing ~ well, from what I heard at the beginning. He talked about his school memories, the fun times, and his friends. He shared about Hannah and how supportive the school was after she passed away, and I lost it.  He asked the principal the next day if he could bring it home because I wanted to read the entire speech.

From what I heard from friends and others there, Ethan had most of the families in the audience in tears. Even Mr. Solomon, his principal, told me after the ceremony that when he first read Ethan’s speech, it made him cry.

I’m so proud of him. I’m hoping to get the DVD that my father-in-law took of the ceremony so I can see the speech again for myself!

For a kid that rarely talks about his feelings about his little sister passing away, opening up like this to the entire school (willingly!) was a huge deal.

Portion of Ethan's handwritten speech where he talks about Hannah - I forgave him for getting her date of passing wrong (it was December 4th)

June 7th – TGI Fridays – Will you be there?

Check out our donation bin at our local TGI Fridays in Henderson! Help us fill it up!

(be sure to bring the event flyer on June 7

Vegas friends, Celebrate the last day of school with us and help us raise money for the Little Miss Hannah Foundation!

20% of all food purchases will go towards LMHF.
June 7th – 11 am to 1:00 am – ALL DAY!

Many of our LMHF families’ brothers and sisters end up spending a lot of time at home due to the constraints of the medical lifestyle of their medically fragile sibling.

With YOUR help, we can help provide them with entertainment during this hot summer and well into the 2013!

Get ready for summer by cleaning out your kids’ no-longer-used DVDs, video games, and books and bring them down to the TGI Fridays on Sunset in Henderson! Our donation bin will be there through our big fundraising event on June 7th (make sure you bring the flyer!)

TGI Fridays #1140
4330 East Sunset Road
Henderson, NV

We are looking for the following items:    DVDs (PG13 and under), Books (for ages 4 to 17), and Video Games and Accessories for both handheld and console systems (such as Wii, Xbox – all versions, Nintendo DS and 3DS, PSP, Playstation (version 2 & 3), and Leapster.

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If you are out of the area and want to donate your kids gently-used media items, please mail them to:

Little Miss Hannah Foundation
10624 South Eastern Avenue, Suite A847
Henderson, NV 89052

All these items will be given to our medically fragile children and their siblings.

http://www.littlemisshannah.org/TGIF_LMHF_June7_Flyer.pdf – flyer for the event

Fine Line of Balancing

Five months old

It is coming up on six months since Hannah passed away.   June 4th looms on my calendar ~ even though the day is blank, I know what that date represents.

I found a few places online for grieving mothers, but only one really speaks to me.  It validates how I am feeling.  It sends out daily sayings such as:

There is nothing or no one that can replace our child! That is what makes child loss such a painful, difficult, life-long feeling of emptiness. You can replace “things”, but how in heaven’s name do people think it’s possible to replace a child? It cannot be done. The hole that is left is a permanent empty spot in the heart and somehow we are left with trying to live with the pain. It’s just plain hard to do!”

It’s so hard to believe — child loss is NOT supposed to happen to anyone! People complain about losing their jobs, or losing their investments, or having a bad day of fighting with their neighbors. These are all things that can be changed. But, child loss…..we can NEVER change that, and the emptiness, confusion, pain, and sorrow are for the remainder of our days on this earth. If only others understood the true meaning of “loss”.

I am not the kind of person who outwardly grieves 24/7.  I realized at our last parent bereavement group, that I am the type of person who doesn’t want to show the grief because I don’t want to make people feel uncomfortable.  Yeah, I know ~ not so healthy.   But sometimes it is just easier than having those awkward moments because people don’t know what to say or do.

Some weeks I am better than others.   Last week, I was a mess – between Mother’s Day, the Make-A-Wish speech, and the sea of Hannah shirts at the Ronald McDonald Run – wow, did I miss Hannah.  Words can’t even touch on how much how hard that was.

Having Hannah’s foundation has been a godsend to me though.  Being able to share her story, honor her memory, and just keep her spirit alive helps me so much.  I get to talk about Hannah to people who are wanting to hear about her ~ and that is a personal gift I get by doing this.

But on the flip side, I only get to talk about Hannah.  I don’t get to experience Hannah.  I don’t get to cuddle her, or rub my fingers through her hair, or caress her face.  I don’t get to sing “You are my sunshine” to her and see her face light up.  I don’t get to lay in bed next to her and hold her hand.

Damn, I miss her.

June 4th is in just 3 more days.  She will be gone for 6 months.  It feels like a horrible milestone.