Every two weeks since she was 6 months old, Hannah has received her Cerezyme infusion for her Gaucher’s disease. It takes about 2-1/2 hours, and most of the time she sleeps through the infusion.
They say it doesn’t cross the blood-brain barrier, which I know is true, but it does not only prolong her time with us but gives her a better quality of life as well by ridding her body of the bad fat in the spleen, liver, bones, and lungs.
Someday they will figure out how to make it help in the brain. I just hope that someday is while Hannah is still here with us.
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