Rough, rough 36 hours or so. I went to do the teacher’s meeting, and it was nice to see some familiar faces there, especially Ethan and Abby’s old teachers. But I just felt so uncomfortable and out of place there this time. I felt my arm start to shake from nerves — seriously? […]
[Continue reading...]Second Annual World Rare Disease Day School Event
21 Feb by
What a difference a year makes. This time last year, we were preparing for Vanderburg Elementary School’s first World Rare Disease Day event. To our family, this was a HUGE gift from the principal and staff of my kids’ school. The entire school left their uniforms at home that day, and over 90% of […]
[Continue reading...]Building support
16 Feb by
We are so lucky to have so many wonderful people working with us and sharing their ideas to help build our new nonprofit foundation! Every single person who “likes” us, “follows” us, or “subscribes” to us can really help make a difference! Please take a moment to help us build our base of support […]
[Continue reading...]Soundtrack of my heart
14 Feb by
I was doing fine up until about 30 minutes ago. I’ve been going nonstop for about a week or so talking to people about our Little Miss Hannah Foundation, focusing on my classwork for my master’s program, getting ready for World Rare Disease Day, and just going about life being a mom to Ethan and […]
[Continue reading...]“Time to Move on”
9 Feb by
I went to the parents bereavement support group tonight, and one of the topics that was brought up for discussion is outside people saying things like “it is time to move on now” or “you need to move on.” As if the death of a child is just something you “do,” like changing jobs or […]
[Continue reading...]Impossible to sum up
6 Feb by
I have spent a lot of time during the past few weeks on the new Little Miss Hannah Foundation website. Talk about a labor of love! The hardest part for me was writing Hannah’s story. I want everyone who wants to learn about the LMHF to learn about who Hannah was, why she was so […]
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