I couldn’t handle Halloween this year, apparently. I didn’t realize this until two days ago when we took Ethan, Abby, and my nephew and two nieces to a big Halloween event here in town.  When Daddy and I were walking, keeping tabs on Ethan and Abby, it hit me that this is our first event […]

Hannah still is not comfortable.  It sucks. It is painful to watch when she gets really uncomfortable and agitated,  Our hospice team is trying so hard to get her comfort manageable, but it seems none of the normal avenues work for her.   Usually they use a lot of narcotics like Ativan, Versed, etc., but […]

For the past year, Hannah has had strabismus (her eyes turned inward).   We see it in all her pictures, and I got used to looking into the beautiful brown eyes and seeing them crossed, but she still would be able to gaze back into my eyes.  Classic Gaucher symptom that you just eventually learn […]