These next three months are going to be absolutely nuts! We close escrow on our new house on April 17th! We have to be out of this house by the end of May. Sounds doable, right?! Right now, we are trying to figure out how we are going to layout the new house. […]
[Continue reading...]“I don’t want Hannah to die”
10 Mar by
Abby has been having some troubles over the past couple of months, both at home and at school. She has her own medical issues (non life threatening) on top of all this. After Daddy came home from work tonight, I took Abby out for some mommy-Abby time. With the exception of doing homework each day […]
[Continue reading...]Equipment frustration
9 Mar by
For the past 3+ months, I have been trying to get Hannah the equipment we need to get her stronger and give her a better quality of life. After Dr. Raja commented that because Hannah does not have any spasticity, that we can work with her mixed tone issues and work to strengthen her muscles, […]
[Continue reading...]Minnie Mouse and learning opposites
8 Mar by
Ethan giving Hannah a “lesson” in opposites while playing with her new Mickey that the Make-A-Wish grant volunteers gave her. She loves it! What is really exciting about this video is that not only are her movements lessened since the increase in her Klonopin, but she actually reaches out to grab Minnie Mouse during this […]
[Continue reading...]Treatment Day
6 Mar by
Every two weeks since she was 6 months old, Hannah has received her Cerezyme infusion for her Gaucher’s disease. It takes about 2-1/2 hours, and most of the time she sleeps through the infusion. They say it doesn’t cross the blood-brain barrier, which I know is true, but it does not only prolong her time […]
[Continue reading...]Moving to a home
5 Mar by
The house that we were looking at earlier in the week and made the offer on is now in escrow! The bank didn’t go for our 60-day escrow, but they did agree to a 45-degree escrow. This would give us about 5 weeks between the new house and having to move out of this […]
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