Our Fight against Gaucher's Disease type 2 or 3
Saturday was the Ronald McDonald House Charities 5k/1m event here in Las Vegas. When we first started coming up with a game plan for our Little Miss Hannah Organization, one of our main goals was to be able to support those organizations that meant so much to us during Hannah’s journey. The Ronald McDonald […]
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Last night, our family was invited to our local Make-A-Wish’s annual fundraising dinner. We were chosen to share Hannah’s story and why our MAW trip last year (has it been a year already?!) was so important to our family. It was an incredible night with about 200 people there, mostly MAW’s major donors. We […]
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Bertrand is a little boy, near and dear to my heart – so much so that his mom and I arranged he and Hannah’s marriage at our visit to the NIH. Please, if you know anyone that can help or fits this description, contact Cristina. REPOST FROM BERTRAND’S BLOG http://overcomingmovementdisorder.blogspot.com Since the identification of Bertrand’s […]
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I have been a grief funk for days now. It started back on May 3rd, knowing that it was coming up on five months since Hannah passed away. Five months. It…has…not…become…any…easier… Seriously, it hasn’t. We have become more used to this new lifestyle that does not include Hannah’s physical presence with us, but there […]
[Continue reading...]I have met some incredible people over the past month or two who have shared their experiences with building a nonprofit here in Las Vegas. Organizations such as Make a Wish, Cure 4 the Kids, Nathan Adelson Pediatric Hospice, etc., have all opened their arms and have agreed to work with us as partners in […]
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Today was the 9th annual butterfly release that Nathan Adelson Hospice, Hannah’s hospice group, puts together. We were invited because a butterfly in Hannah’s name was purchased for this event by her social worker and lead nurse. It touched us so much that they cared about her so much that they wanted her included […]
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