Yes she is! These past two weeks have been absolutely amazing in terms of a developmental spurt with Hannah. I had been holding off sharing it because it just seemed to good to be true, and I didn’t want to jinx it. But she is doing these things more and more that I really believe […]
[Continue reading...]Hannah’s 2nd Happy Holiday!

One of the gift’s of keeping a journal like this is being able to go back in time and see what you were thinking and feeling like at Hannah’s first Christmas. There were just a few times during the past few days that I think about what we have in store for us in the […]
[Continue reading...]Trying to understand Hannah’s symptoms

Right off the bat, I am so incredibly grateful that Hannah has such wonderful doctor’s in her corner. Dr. Roy, her ENT, and Dr. B, her pediatrician, have been emailing back and forth (CCing me) about getting a handle on these choking/gagging and hyperventilation episodes that Hannah has now. She really has the best of […]
[Continue reading...]Reflections of today…
This afternoon was tough for me. We got home from our failed road trip, and I felt very mopey and defeated for the few hours after that. All I kept thinking is, how the heck are we going to get her to the nursing home in order to fulfill this requirement for the MDCP (Texas’ […]
[Continue reading...]Oh well…
We are back home already. Three hours after we first left to head to the nursing home. We only made it 50 miles (1/4 of the way there), and Hannah had already had four hyperventilation episodes by that point. There was just no consoling her in her car seat, so we had to stop, take […]
[Continue reading...]My stomach is in knots
In about 15 minutes we head out for our road trip to the nursing home. By map, it is only a 4-hour drive. But since we will be making numerous planned (and hopefully no unplanned) stops, it will probably be more like 6 hours. Right now, my stomach is in knots. Not as much because […]
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